chronic fatigue syndrome, fibromyalgia, fms, cfs, myalgic encephalomyelitis, me, lyme disease, chronic lyme disease, cld, environmental illnesses, multiple chemical sensitivies, mcs, gulf war syndrome, gws, gulf war illnesses, empowerment groups, support groups,cfids

A Non-Profit Organization
501c3

chronic fatigue syndrome, fibromyalgia, fms, cfs, empowerment groups, cfids

To make a financial donation to P.A.N.D.O.R.A., click the button below.

OUR NEW 2010 BROCHURE IS IN!

By including real-life accounts, the new PANDORA brochure shows the impact NeuroEndocrineImmune disorders have on those stricken. We stressed that these illnesses can affect anyone, thus breaking stereotypical views.

The brochure also emphasizes that improvement can be made through the future NEI Center™. The feedback on the brochure eye catching butterfly photo has been great.

We especially want to thank fibromyalgia patient, Brad Ellis; CFS/ME patient, Ryan Baldwin; chronic Lyme disease patient, Carol Fisch; and Gulf War illness patient, Mary Ann Parker for allowing their photos and stories to be put out to the public.

CLICK HERE TO PRINT OUR BROCHURE.

We are grateful to our wonderful volunteer graphic artist Lynn Bousquet who collaborated with Tina Marie Tidmore, our Communications Director in the preparation of a wonderful and artistic brochure. If you wish to receive our brochure please e-mail us.

IT IS OFFICIAL! We did IT because of you!

P.A.N.D.O.R.A. wins a $20K grant from Chase

Community Giving. Our final ranking was #162 with

1,571 votes. Click here! to go to the winning page.

Our vision is to interrupt this cycle of suffering experienced by so many! You can help us. Donate to P.A.N.D.O.R.A. today. Click in the Google Donate Button below. Your generous donation will support the process required to establish Neuroendocrineimmune Disorders Research Centers in the U.S. and abroad. These special research centers dedicated to our community of suffering, will lead to scientific breakthroughs, physician training, scholarships for the chronically ill, and most importantly improve the quality of life for individuals with Neuroendocrineimmune Disorders (NEIDs).

DONATE BY CLICKING ON THE GOOGLE BUTTON BELOW

P.A.N.D.O.R.A. is here to help. P.A.N.D.O.R.A. was built on Hope. We are strong on Advocacy and we support scientific Research, so ultimately a Cure can be found for CFS/ME, FM, GWI, MCS/EI, PLD, and other related and debilitating neuroendocrineimmune disorders.

SOCIAL & POLITICAL BASE

We are taking advantage of the social networks that now exist in the internet to create a political base for the Neuroendocrineimmune Disorders worldwide community. In particular in the United States, we see the crucial need to get the advantages that a social network provides to spread our message and learn from our membership and strategical partners.

We now have a strong presence on Facebook, and Facebook users are supporting P.A.N.D.O.R.A. through these Causes:

Fibromyalgia Sufferers Unite

The CFS/FM Center for Hope

Depleted Uranium is War Crime

P.A.N.D.O.R.A.'s social network efforts to communicate, share ideas, exchange information, mobilize national and worldwide advocacy, and more importantly, create a supportive environment for long lasting friendships. This interaction will capitalize and benefit our national & international membership. Our goal is to create a unified socioeconomic and political base which will pro-actively become a powerful force for change.

Ryan Michael Baldwin was reunited with his family for Thanksgiving in 2009. The long lonely months Ryan endured without his family have taken a toll on Ryan. Show your support for this brave young man. Ryan is now 18 years old.

The Baldwin family is now faced with a pile of medical and legal bills. You can see Ryan's picture pre-ME/CFS playing soccer in the mountains around Asheville, NC. Ryan was recently diagnosed with the

XMRV virus. Click here for the Mountain Xpress.com article on XMRV diagnosis.

Click here for 1st article on Ryan's family ordeal.

Click here for the 2nd article on Ryan's plight.

An alliance of 23 patient advocacy non-profit organizations signed off on a letter to Governor Bev Perdue asking her to investigate why the Department of Social Services (DSS) in Buncombe County, NC has taken the draconian steps of removing Ryan from parental care.

P.A.N.D.O.R.A. wrote letters to Buncombe County Commissioners, NC State Legislators and NC Federal legislators on his behalf and of his family.

Click here to read the letter written to the Governor Bev Purdue.

We are grateful to Pat Fero, from the Wisconsin CFS-ME Association for calling our attention to the plight of this courageous family.

Due to the legal issues of this case, we refrained from making any comments, which could have been misinterpreted or caused additional pain and retaliation towards Ryan's family.

Join Ryan's Cause on Facebook.

ACKNOWLEDGEMENTS

OUR YEAR AROUND GREEN PROJECT

Our ongoing "Green Project" - Don't Dump it! Donate it to P.A.N.D.O.R.A! and Save the Environment. Since the beginning of 2008, when this green environmental project was implemented, it has generated over $1,200 and we are using these proceeds to offset our ongoing communications internet expenses.

We want to acknowledge the many corporations and local businesses who are helping us with this project. We are grateful to Coastal Construction. They have set up several collection boxes through their offices for cell phones, ink toners and ink cartridges. The proceeds of the sales of these recycled items to Dade Recycling Inc. are being donated to P.A.N.D.O.R.A.

If you know of a corporation or business that could be part of this environmental friendly project, please contact P.A.N.D.O.R.A. and we will make sure they join the corporations above and many more who have signed up for the "Green Project".

EVERY YEAR - MAY 12 is

International Awareness

Day for

Neuroendocrineimmune

Disorders

Click here to view our Awareness Month Events and our 2009 Awareness Day Poster

P.A.N.D.O.R.A. is a recipient of a Google Grant

Award.

The Google Grants program supports organizations sharing Google's philosophy of community service to help the world in areas such as science and technology, education, global public health, the environment, youth advocacy, and the arts.

Designed for 501(c)(3) non-profit organizations, Google Grants is a unique in-kind advertising program harnessing the power of Google AdWords advertising product. Google Grants has awarded AdWords advertising to hundreds of non-profit groups whose missions range from animal welfare to literacy, from supporting homeless children to promoting HIV education.

Become a Member of P.A.N.D.O.R.A. Today and Join Our Mailing List
Enter your email to receive our newsletter containing information about upcoming events, empowerment meetings, and updates on research and advocacy.

1Voice,1Community,1Cause™

NEW! You wrote us and we took action! We now have the

Facebook sister petition on

Change.org for our members

and supporters who are not on Facebook. Click here to send an urgent message to U.S. Secretary Kathleen Sebelius of the urgency for funding for Centers of Excellence for CFS- ME and other NEIDs.

1Voice, 1Community, 1Cause!™

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Our Facebook Petition to U.S.

Secretary of Health Kathleen

Sebelius now has 1,833

signatures! Take ownership of your future. Sign this petition today.

You can also find P.A.N.D.O.R.A.'s petition addressed to the U.S. Secretary of Health on American Express Members Project-TAKE PART.COM

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Press Release dated Aug 25, 2010 P.A.N.D.O.R.A. Urges Swift Action by U.S. Health Agencies to Improve Quality of Life for CFS Patients

Click here for the PDF of the above press release.

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A TWIBBON FOR

P.A.N.D.O.R.A.!

We have created a twibbon for P.A.N.D.O.R.A. utilizing the Advocates Extraordinaire Ribbon designed and donated to P.A.N.D.O.R.A. by Sebastian Chico. Support this very creative effort to raise awareness for

P.A.N.D.O.R.A.'S cause on Facebook and on Twitter.

Here is the link for Facebook.

Here is the link for Twitter

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Follow Marly Silverman on

Follow P.A.N.D.O.R.A. Twibe on

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Join P.A.N.D.O.R.A.'s cause

The NEI Center™ on

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P.A.N.D.O.R.A., Inc. - Non Profit Organization on Facebook

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Click here for the NEI

CENTER press release.

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Join Marly Silverman's Blog

Agent for Change

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Join us on Youtube.com

Click here for

P.A.N.D.O.R.A.-TV

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Update:"Time for Action"- A CFS-ME Advocacy Campaign.

Click here for instructions on

how to express our thanks to Dr. Dennis Mangan from the NIH and to get the latest update on what transpired behind the scenes during the CFSAC meeting.

..."The "Time for Action" campaign was successful. Congratulations to patients, their families and friends! More than 2,000 emails to NIH Director Collins and NIAID Director Fauci. Also, a large but uncountable number of calls were made and faxes were sent. Patients used their wonderful creativity and sent everything from our suggested one-liner to hand-drawn cartoons to poignant medical histories."

P.A.N.D.O.R.A. brought in the striking black and white ACT NOW Cards, which were used by patient advocates to express their concerns and outcry for the ME-CFS community in the U.S. and abroad. Pictured below are: Marly Silverman, Bob Miller, Joe Landson, Heidi Bauer, Charlotte, Ruth and Mike Dennis.

After Dr. Mangan embraced the term ME-CFS instead of just CFS, patient advocates cheered loudly in the room. In reaction, patient advocates wrote on the back of the black & white cards

"Thank you" acknowledging Dr. Mangan. Below are Cort Johnson and Mike Dennis holding the card.

A word of appreciation to Robert Miller, Rivka Solomon and Charlotte Van Solis who are coordinating and organizing these united advocacy efforts. We are proud to be part of it.

1Voice,1Community,1Cause™