Our Ask

June 28, 2006

by Marly Silverman

For the past year and half, when we visit our congressional representatives and senators on Capitol Hill we have included the following legislative issues listed below as part of our "ask".  Without these efforts in place, many people in our community of suffering will continue to suffer and will endure additional and, many times irreversible physical, mental, emotional and financial adversities simply because they have no where to go for medical care. As it is often said in a myriad of situations, "It ought to be a law!"

We realize that without these safe support systems in place, individuals and families who are dealing with neuroendocrineimmune disorders will not even have the capability to survive, much less the opportunity to lead productive lives.  These two issues speak directly to many in our community, and they are issues that considerably affect the overall quality of life for too many individuals and far too long.

Consequently, we are strongly supporting, advocating, and providing legislative lobbying assistance to the efforts of the America Pain Foundation.  Please to go our Advocacy Page to read more about these important efforts.

We are also supporting the legislative efforts of the Medicare Rights Center to end the 24-month waiting period for persons who due to poor health qualify to receive disability benefits under Social Security. Click here for the most recent press release concerning these issues.  Individuals who are suffering with CFS, FM and other potentially disabling neuroendocrineimmune disorders endure serious financial and physical consequences because they lack access to medical care during the 24 months that they have to wait until Medicare coverage begins.

We ask you that you visit the web sites of these two organizations and lend your support to their cause which is also OURS!.  Mention to their organizers that P.A.N.D.O.R.A. sent you!