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Advocates Extraordinaire

 

A Nationwide Advocate Team Participates in the

Department of Health and Human Services

Nationwide Efforts to Highlight Health Care for

American stricken by Chronic Fatigue Syndrome

Advocate Extraordinaires Pat Fero, Mary Schweitzer, Rik Carlson, as well as Steve DuPre, Karen Campbell, Meghan Shannon and Patricia Blankenship participated by preparing a report for the Obama-Binden transition team.  They have worked with a national committee discussing health care issues by providing input on what we need for CFS/ME patients and their familites to have quality of life.

Click here: For the Vermont CFIDS Obama-Biden-Report

 

ADVOCATES EXTRAORDINAIRE!© IN ACTION

P.A.N.D.O.R.A.'s 2007 Advocates Extraordinaire Barbara Soliday and Dr. Lina Garcia (from Colombia) who were part of the P.A.N.D.O.R.A.'s Florida delegation during Lobby Day May 14-15, 2007, also attended the CFS Advisory Committee 2 day meeting at our nation's capital on May 16-17 on behalf of P.A.N.D.O.RA. They deserve our sincere gratitude for their commitment to Advocacy and to our community!

Left to right- P.A.N.D.O.R.A. board and Advocate Extraordinaire Dra. Lina Garcia, Marly Silverman, founder of P.A.N.D.O.R.A., distinguished U.S. Rep. Eliana Ros-Lehtinen (Rep) and 2007 Advocate Extraordinaire Barbara Soliday

We are proud to say that P.A.N.D.O.R.A. delegates were able to get 3 Florida congressmen to sign up, more than any other state represented in the letter. Indeed it was a major accomplishment for our advocates Barbara Soliday and Dr. Lina Garcia who were part of the P.A.N.D.O.R.A.'s Florida delegation. They deserve our sincere gratitude as well. They walked the halls of Capitol Hill with efficiency, grace and perseverance. They were on a mission!

Advocates Extraordinaire Barbara Soliday and Dra. Lina Garcia with P.A.N.D.O.R.A.'s founder Marly Silverman visiting Senator Bill Nelson's office in Washington D.C..

Pictured above are from right to left, Pat Fero, Executive Director of the Wisconsin CFS Association, the recipient of the prestigious 2007 Sand Castles Award Female Advocate and Marly Silverman standing in front of one of the Caucuses Room at our nation's capital. A perfect visualization... wouldn't you say so?

 

From Left to Right Eva Dominguez, Sr. Legislative Aid, Office of Rep. Robert Wexler, 2007 Advocate Extraordinaire Barbara Soliday, Marly Silverman and 2007 Advocate Extraordinaire Dra. Lina Garcia

P.A.N.D.O.R.A. Advocates Extraordinaire Barbara Soliday and Dra. Lina Garcia

applying their learned advocacy skills at a meeting with a staff from Senator Bill Nelson. Also in the picture is Kevini Mathis, a consultant with The Sheridan Group, a lobby firm in DC.

Left to right- Dra. Lina Garcia, Marly Silverman and Barbara Soliday at

Senator Mel Martinez' office in Washington DC

Left to right - Marly Silverman, Legislative Aid for Senator Lamar Alexander and Barbara Soliday

 

International 2007 Advocate Extraordinaire and our board member Dra. Lina Garcia at the CFS Advisory Committee Meeting at the Department of Health and Human Services in Washington DC

From left to right - CFS Advisory Committee member Rebecca Artman and CFSAC Chair Dr. James M. Oleske, Marly Silverman and a patient who testified at the CFSAC meeting with her father at her side.

P.A.N.D.O.R.A.'s participation in the CFIDS Lobby Day was enhanced by the opportunity to also attend the 2-day CFS Advisory Committee meeting at the Department of Health and Human Services. It was extremely rewarding for our delegation to watch Rebecca Artman, the sole patient advocate in this distinguished committee representing our patient community so well!

 

Left to right - 2007 Advocate Extraordinaire and PANDORA Board Member, Dra. Lina Garcia, Dr. Nancy Klimas, CFSAC member and member of PANDORA's Medical Advisory Board and 2007 Advocate Extraordinaire Barbara Soliday

We hope to engage our Florida U.S. Senators as well! Please send them a e-mail supporting P.A.N.D.O.R.A.'s efforts. We need to effectively create awareness and educate our Senators about the quality of life issues of our community. 

WE SALUTE SPECIAL 2007 ADVOCATE EXTRAORDINAIRE!© Featuring SANDI LANFORD, Founder of The Lanford Foundation-Lifelyme, Inc.

June 2007

Sandi

Sandi Lanford

One of our special 2007 Advocate Extraordinaire!© Sandi Lanford was the lucky winner of the AirTran Airways airlines tickets donated to P.A.N.D.O.R.A. during the IACFS Conference in January 2007.  She was featured in the Tallahassee Democrat, a local newspaper in Tallahassee, Florida, on June 4, 2007.  We are proud of Sandi’s statewide efforts on behalf of Lyme disease sufferers and her advocacy work has led her to founding a non profit organization – The Lanford Foundation - Lifelyme, Inc dedicated to create awareness for Lyme disease in Florida and beyond.

Click here: lymeblog.com

 

Archive: Clara Valverde
 

Click here for the 2007 Advocates Extraordinaire! Advocacy & Leadership Training flyer and for the Sand Castles Awards information at the IACFS Conference

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

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