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P.A.N.D.O.R.A.'s 2009 Awareness Events

 

 

Click here for our May 12 Awareness Day poster.

 

JOIN US AT OUR WALK IN MY SHOES™

WALKATHON ON MAY 23, 2009

 

 

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Virtual Lobby Day 2009 Begins: Make a Difference!!

 

 

May 12 is international CFS/CFIDS/ME/FM awareness day. For each of the past 5 years, the CFIDS Association has enlisted help from advocates through its Virtual Lobby Day to contact elected officials, health policy leaders and the media about CFS. Virtual Lobby Day 2009 begins now!

Your local media can help spread the word about the impact, severity and prevalence of CFS. Direct them to information resources and ask them to bring greater understanding to the public. Tell your story as an inspiration to reporters to cover the issue. We've added facts and figures to help affirm the effect of CFS on your community.

 

You can check out all the recent coverage of CFS in the media at http://www.cfids.org/sparkcfs/media-coverage.asp. See how individuals like you, talking about their experiences, help raise awareness and deepen understanding.  

 

Click here and :"Take Action," enter your zip code and say as much or as little as you'd like about how CFS has affected your life.

 

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P.A.N.D.O.R.A.’s list of events, during our 2008 Awareness

Day/Month celebrations:

 

May 5-6, 2008

The Empty Chair© Project display at the CFS Advisory Committee Meeting in Washington DC.

 

May 5, 2008 announcement from P.A.N.D.O.R.A.

Subject: News from P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy AnnouncementPress Release
JUST IN TIME FOR P.A.N.D.O.R.A.'s Awareness Month for Neuroendocrineimmune Disorders  celebrations, Yvette Taylo, a director of  P.A.N.D.O.R.A. is honored by the Sun-Sentinel as one of the Unsung Heroes in the South Florida community. 
Yvette Taylor, Director, P.A.N.D.O.R.A.With May 12th Awareness Day for FM, CFS-ME, GWS/GWI, multiple chemical sensitivities, and chronic Lyme Disease, it is the perfect time for a Sun-Sentinel interview with Yvette Taylor, pictured above, about PANDORA and her work as an Advocate Extraordinaire and Leader Against Pain.    Yvette was highlighted in the Sun-Sentinel column - Unsung Heroes, dated May 4, 2008.   Click here to read the article.    After reading the article forward it to others and send a note to Ms. Tina De LaFe. You will find her  contact information in the bottom of the article.    MAY 12 IS AWARENESS DAY!   Join Marly Silverman and Yvette Taylor and become an agent for change. Click here for an update on Marly Silverman's trip to Capitol Hill on May 5-6, 20098-Read her blog Oneagentforchange  CFSAC Member Rebecca Artman & The Empty Chair Project 2007     Pictured above is Rebecca Artman, the sole patient advocate member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). The commmittee is meeting May 5 and May 6 at the Dept. of Health & Human Services in Washington DC.    
Quick Links OneAgentforChange Blog- Marly Silverman reporting from the CFSAC Meeting in  Washington DC   P.A.N.D.O.R.A.'s Website  
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
Marly C. Silverman
Founder   
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P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy | A not for profit 501 (c) (3) charitable organization | Business Office: c/o Vina & Company, 255 Alhambra Circle, Suite 715 | Coral Gables | FL | 33134
 

 

May 6-7, 2008

I Need a Hero Project©- Lobby Day for P.A.N.D.O.R.A. on Capitol Hill.

May 12, 2008


Awareness Day Proclamation letters from the cities of Pembroke Pines, Deerfield Beach, Delray Beach, Lighthouse Point, Boca Raton and Delray Beach, Florida and from Murphy, North Carolina. Click here for the complete list and locations.

 

Proclamation Day Ceremony Pictures

 

 

 

 

    

 

Sheila DeRuzza, P.A.N.D.O.R.A.'s Advocate Extraordinaire

and Vice Mayor Brenda Montague

 

 

 

Boca Raton Mayor Susan Welchel and

P.A.N.D.O.R.A.'s board member Karen Sacks.

 

May 23, 2008

Pandora's First Annual Golf Classic Tournament

May 23, 2008

GOLF FORE A CAUSE!

SWING FORE A CURE!

To be held at the Country Club of Miami, on May 23, 2008

6801 N.W. 186 Street • Miami, Florida • 33015

Phone for directions: 305-829-8456       

 

 







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