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P.A.N.D.O.R.A. nominated the following individualsto be onthe CFSACbeginning in thespring of2010: Dr. Paul Chenney, North CarolinaCaroline Fibrance, Esquire, Wisconsin John Herd, California Eileen Holderman, New Jersey Dr. Herbert Hyman, Florida Cort Johnson, Arizona Steve Krafchich, Esquire, Washington State Jill McLaughlin, Massachussetts Dr. Martin Pall, Oregon Dr. Dan Peterson Dr. Richard Podell, New Jersey Dr. Albert Robbins, Florida Barbara Soliday, Florida Dr.Jacob Teitelbaum, Hawaii Annette Whittemore, Nevada Join P.A.N.D.O.R.A. on Facebook
CFSAC meeting on May 27- 28, 2009 was one of the best PANDORA has ever attended. Click here to read the written testimony provided by PANDORA. Marly Silverman, founder of PANDORA was given the opportunity during the time assigned for public testimonies to speak. She used Facebook and report on some of the action during the first day. She also posted on ME-CFScommunity.com Click here to view the archived video broadcasts for both days. We were told that from now on all future meeting of the CFSAC will be broadcasted in order to comply with the ADA government mandates. A victory indeed for everyone involved in getting this off the ground - Rebecca Artman, MAME (Mothers Against Myalgic Encephalomyelitis), Dr. Kenneth Friedman, PANDORA's The Empty Chair Project in partnership with advocates from almost all 50 states including national, state and local sister organizations including local groups who sent pictures, who wrote letters that we delivered to our congressmen, made phone calls and a special acknowledgement goes to MAME (Mother Against Myalgic Encephalomyelitis) a group of concerned grass roots advocates led by Jean Harris. Her team filed with the Office of Civil Rights to ensure accessibility of these meetings to the disabled would be accommodated. Kudo to her dedicated team! Our patient advocacy community through unity has its VOICE back where it needs to be. ONE VOICE, ONE COMMUNITY, ONE CAUSE!
PAGES YOU WANT TO VISIT Advocates Extraordinaire Program/NEI Research Centers Project Empowerment Groups and sub-menus Empowerment & Support Group Meetings Advocates Extraordinaire Program/NEI Research Centers Project
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