chronic fatigue syndrome, fibromyalgia, fms, cfs, empowerment groups, cfids

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Consumers Union - Nonprofit Publisher of Consumer Reports


is eager to learn the stories of anyone you might know who is facing foreclosure.  Since they advocate for both healthcare and financial matters, foreclosure threats suffered by people with FMS, ME/CFS, GWS, etc., would be of particular interest to them and they may be able to help as well.

Click here to view the main web-site

Barbara Sloan, Wallingford, Connecticut




One of our special 2007 Advocate Extraordinaire!© – Sandi Lanford, pictured above is the President of The Lanford Foundation - Lifelyme, Inc. We are proud of Sandi’s statewide efforts on behalf of Lyme disease sufferers and of her advocacy work on behalf of neuroendocrineimmune disorders. Sandi and her team of volunteers are dedicated to create awareness for Lyme disease in Florida and beyond.

The Lanford Foundation in partnership with the University of Florida are sponsoring a very important conference titled Similarities and Paradoxes in Chronic Illnesses. We strongly support Sandi's efforts in Florida and two of our board members - Dr. Kenneth Friedman and Dr. Nancy Klimas will be featured guest speakers during the conference and will be introduced by Rebecca Artman, our Public Policy and Community Advisor.

See their presentations information below:

10:15 -11:00am
"The Positive Side of Lyme Disease"
Kenneth Friedman, Ph.D. Associate Professor, College of Pharmacology
and Physiology, Medical School of New Jersey

2:15 - 3:00pm
"Current CFIDS Research"
Nancy Klimas, MD Professor of Medicine, Psychology, Microbiology and
Immunology at the University of Miami School of Medicine. Dr. Klimas is the principal investigator of one of the 3 NIH sponsored CFS Research Centers and President IACFS ( International Association for for Chronic Fatigue Syndrome)

Lyme disease experts such as

  • Kerry Clark, Ph.D., M.P.H., Associate Professor Epidemiology & Environmental Health, Department of Public Health, University of North Florida, Jacksonville, FL;
  • Leslie Fein, MD Private Practice, Internal Medicine, Rheumatology, and Lyme Disease." E. Caldwell, NJ,
  • Joseph Jemsek, MD Infectious Disease and Internal Medicine, founder of the Jemsek Clinic for Lyme Disease and HIV/AIDS, Huntersville, NC,
  • Brian Fallon, MD, M.P.H., Associate Professor of Clinical Psychiatry at the Columbia University College of Physicians and Surgeons, Director of the Center for the Study of Neuroinflammatory Disorders & Biobehavioral Medicine, Columbia University,
  • Charles Ray Jones, MD, Pediatrician, Private Practice in Hartford Connecticut.

If you have or suspect you have Lyme disease you owe to yourself to print the conference brochure and take it to your treating physicians.

The conference is designed for the continuing
professional development of clinicians & physicians
nurse practitioners, nurses, psychologists & health
care professionals.

Course Objectives
Upon completion of this course, attendees
should be able to:
• Recognize the pathogens carried by ticks and
other vectors in the US.
• Recognize and analyze the overlapping symptoms
in chronic illnesses like fibromyalgia,
chronic fatigue, and vector borne diseases.
• Diagnose, evaluate and treat Borrelia Burgdorferi
& co-infections in their patients.
• Identify clinical features of CNS diseases and
select appropriate tests for diagnosis ( including
laboratory and brain imaging scans).
• Describe the results of the NIH funded study
and controlled treatment trials.
• Define the limitations of the laboratory diagnosis
of Bb and co-infections in low prevalence areas.
• Acquire an understanding of the clinical differences
in CFIDS, GWS, MCS & and Tick-borne

Continuing Medical Education (CME)

This activity has been planned and implemented in
accordance with the Essential Areas and Policies of the
Accreditation Council for Continuing Medical Education
(ACCME) through the joint sponsorship of the University
of South Florida College of Medicine, Morton Plan Mease Hospital and The Lanford Foundation Lifelyme, Inc.

The University of South Florida College
of Medicine is accredited by the ACCME to provide
continuing medical education for physicians.

The University of South Florida College of Medicine designates
this educational activity for a maximum of 4.5
AMA PRA Category 1 Credit(s)™. Physicians should only
claim credit commensurate with the extent of their participation
in the activity.

The University of South Florida College of Nursing is
accredited as a provider of continuing nursing education
by the American Nurses Credentialing Center's Commission
on Accreditation. This activity is for 4.5 contact

The University of South Florida College of Medicine is
approved by the American Psychological Association to
sponsor continuing education for psychologists. The University
of South Florida College of Medicine maintains
responsibility for this program and its content. This activity
is for 4.5 credits

The University of South Florida College of Medicine is an
approved provider of Continuing Education for Physical
Therapists pursuant to the Board of Physical Therapy
chapter 64b17-9. The University of South Florida College
of Medicine designates this educational activity for
up to 5.4 contact hours

PGA Educational Points
Dr. Ernie Lanford, Ed.D., PGA Class A Professional in Residence,
Florida State University, Tallahassee, FL
The Professional Golfers of America had deemed this
activity as an educational course for members of the PGA.
Members of the PGA attending this activity will earn 4 points
towards their PGA continuing education requirement.

Click here to download the conference brochure with complete information about this great educational effort.


Our board member Sabrina Johnson, founder of F.A.C.E.S. - Fibromyalgia Association Created for Education and Self-Help, Inc., an association committed to eradicate pain and find a cure for Fibromyalgia is hosting a conference in Chicago, Illinois that you don't want to miss it! F.A.C.E.S. is one of our most prominent community partners.

Conference Highlights:

2007 Midwestern Fibromyalgia/Chronic Fatigue Syndrome Conference

"Crossing the Chronic Pain and Fatigue Bridge to Move From Victim to Victor!"

May 18-20, 2007

Holiday Inn Matteson

Hotel and Conference Center

500 Holiday Plaza Drive

Matteson, Illinois 60443

$150 per person until April 01, 2007
25% discount for groups of four or more


Conference room rate: $109 per night


Call (708) 747-3500 and ask for the "Fibromyalgia rate" to reserve your hotel room at the 2007 Fibromyalgia/Chronic Fatigue Syndrome Conference before April 10, 2007.


Conference Attendee Space is Limited:  Register early for the biggest discount. 

Advanced Registration: Before April 01, 2007 is $150 per person.  There is a 25% discount for groups of 4 or more.

Late Registration:  April 02 to April 30, 2007 is $175 per person.

Last Minute Registration:  May 01 to May 10, 2007 is $200 per person.


You can register for the conference, the opening gala or both on line at through the security of paypal.


This year, the super bowl champions of football are guaranteed to come from the Midwest.  This year the champions of Fibromyalgia and Chronic Fatigue Syndrome research, treatment and advocacy are coming to the Midwest.  Join us in Chicago in May and learn how to Step Out for Awareness.

P. S.: F.A.C.E.S. has established the Linda D. Lewis Unity Wellness Scholarship Fund to help disabled people with Fibromyalgia and Chronic Fatigue Syndrome attend our conference and future conferences of our community partners such as P.A.N.D.O.R.A. in the future.  For information please visit F.A.C.E.S. web site.


Click here to see the latest P.A.N.D.O.R.A. ad published on the November 2006 Los Angeles Magazine, under the community program titled LA Magazine Cares. We are sincerely grateful for their support of P.A.N.D.O.R.A. as they were the first large publication that introduced our work, goals and our mission back in 2003 shortly after our organization was created. The Los Angeles Magazine has been a wonderful and very supportive partnership allowing us to reach a greater and wider audience year after year. 



CFS Public Awareness Campaign!

Chronic fatigue syndrome, or CFS, is a complex chronic illness that results in profound fatigue and a number of other debilitating symptoms. The CFS public awareness campaign provides current information about the illness for patients and individuals experiencing symptoms of the illness, caregivers and family members, and health care professionals.

Information is provided here on symptoms, diagnosis and treatment options for CFS. You're not alone. There is help available.                        

            Get informed. Get diagnosed. Get help.

This campaign micro site is part of the CFIDS Association of America’s main web site. To visit the main site, click here.


NJCFS Association Spring Conference and the KNOW MORE CFS seminar series.
In March 10, 2007, (Saturday) the New Jersey CFS Association and the CFIDS Association of America will join forces to bring you a special event that combines the NJCFS Association Spring Conference with the KNOW MORE CFS seminar series. Click here for complete information.


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