The Connecticut CFIDS & FM Association, Inc.
P.O. Box 3010
Milford, Connecticut 06460
Click here to view web site
Click here to view PURDUE Pharma web site
Click here to view In The Face of Pain web site
Marly Silverman, P.A.N.D.O.R.A.'s
founder is featured in the Face of
Pain website under "Advocacy
...To be or not to be a patient advocate was never an issue; I knew had it in me. The real question was how to be an effective patient advocate. I found my answers in the advocacy tool kit I was given during the advocacy and leadership training's in which I participated in collaboration with other nonprofit organizations, such as the National Fibromyalgia Association and the American Pain Foundation. The first time I was handed the tool kit, I noticed that mine was red, quite different from the pretty ones being distributed. The reason for the red binder was that they were short on the correct binders for the advocacy tool kit. Instead of remaining disappointed, I simply named it my Red Book, as a reminder to me that the color red is symbolic with empowerment and achievement. Since then, through P.A.N.D.O.R.A. we have had our own advocacy and leadership training titled Advocates Extraordinaire©, and I have of course shared with others this wonderful training and have given out the extra advocacy tool kits I received. But not my Red One. That one is mine to keep.
—Marly C. Silverman
P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
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