chronic fatigue syndrome, fibromyalgia, fms, cfs, empowerment groups, cfids


A Non-Profit Organization
501c3

Board of Directors





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FEDERAL ADVOCACY

Pictured below is Denise Lopez-Majano, a mother with two CFS-FM children. Denise is a wonderful Advocate Extraordinaire™ supporting P.A.N.D.O.R.A.'s man project - the Establishment of the NEI CENTER™,  a patient driven community grass-roots project.

 

Click here to visit our Youtube.com page.

Our Petition to U.S. Secretary of Health Sebelius now has 958 signatures. Our goal is to reach 1,000 before the CFSAC meeting.

You can find P.A.N.D.O.R.A.'s petition addressed to the U.S. Secretary of Health on American Express Members Projec t-TAKE PART.COM & on FACEBOOK.

On April 20, 2010, we submitted our input to the American Psychiatric Association (APA) regarding the inclusion of CFS-ME, FM, GWS, MCS/EI, and chronic Lyme disease under the umbrella of CSSD - Complex Somatic Symptom Disorder. See an excerpt from the letter below. Click here to read the entire letter

We would like to provide our input to an open request for input on proposed changes to the fifth revision of the Diagnostic and Statistical Manual of Mental Disorders (DSM).

P.A.N.D.O.R.A. is deeply concerned by the American Psychiatric Association’s potential reclassification which not only may include CFS as a somatoform disorder in DSM-5, but also Fibromyalgia (FM), toxic encephalopathy or multiple chemical sensitivity (MCS), chronic Lyme disease (CLD) and Gulf War Illness (GWI). These illnesses are under the scientific umbrella concept of Neuroendocrineimmune Disorders (NEIDs) embraced by our organization.

P.A.N.D.O.R.A. provides written testimonies U.S. House & Senate

FY 2011 Budget.

We provided on April 12, 2010 written testimony to the Subcommittee on Labor, Health and Human Services, Education and Related Agencies Committee on Appropriations, United States Senate - FY 2011

We provided on April 16, 2010 writen testimony to the House Appropriations Committee on Labor, Health & Human Services, Education and Related Services.

A TWIBBON FOR P.A.N.D.O.R.A.!

We have created a twibbon for P.A.N.D.O.R.A. utilizing the Advocates Extraordinaire Ribbon designed and donated to P.A.N.D.O.R.A. by Sebastian Chico. Support this very creative effort to raise awareness for

P.A.N.D.O.R.A.'S cause on Facebook and on Twitter.

Here is the link for Facebook.

Here is the link for Twitter

May 10, 2010 - CFS Advisory

Commitee Meeting

The CFSAC has advised that their next meeting will be held on May 10, 2010, at the Department of Health and Human Services, Washington, DC.

Click here for the Federal Register Notice

CFS Advisory Committee

Meeting was held on

October 29-30, 2009.

CFS Advocates attended this meeting in person or via the web site video-cast. On the first day October 29, 2009 - 400 Hits in the AM presentation via the the web cast. Hundred more have sent their story to the CFSAC committee. We want to thank those who sent their testimony via e-mail and cc Marly Silverman too.

Click here for the agenda's meeting

Click here for Marly Silverman's CFSAC testimony on October 29, 2009.

Click here for Dr. Kenneth Friedman's CFSAC October 30, 2009 written testimony.

 

CLICK HERE OUR FEDERAL ADVOCACY 2002-2009 ARCHIVES PAGE.

 

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