A Non-Profit Organization
Senator Martinez' office can help you with issues with a federal agency. He has offices in several parts of the state. Click here to check an office in your area.
www.cdc.gov - The Centers for Disease Control and Prevention
To go to the CDC’s CFS SPARK campaign web site, click here
Social Security Online- Main web site.
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program.
pays benefits to you and certain members of your family if you are "insured," meaning that you worked long enough and paid Social Security taxes.
Supplemental Security Income pays benefits based on financial need.
Use the Benefits Eligibility Screening Tool to find out which programs may be able to pay you benefits.
If you are having a problem with a Federal Agency you can ask for assistance from your Senator.
Please note the following: In order to find out how long your Senator remains in office please read below:
Class - Article I, section 3 of the Constitution requires the Senate to be divided into three (3) classes for purposes of elections. Senators are elected to six-year (6)terms, and every two (2)years the members of one class - approximately one-third 1/3) of the Senators - face election or reelection. Terms for Senators in Class I expire in 2013, Class II in 2009, and Class III in 2011.
Cash & Counseling
New program now available in several states including Florida, based on a research grant study provided by the Robert Wood Johnson Foundation. The program entails the expansion of a proven model of consumer-directed supportive services to more states, allowing thousands more older adults and people with disabilities to have choice and control over the care they receive. UNFORTUNATELY THIS PROGRAM IS NOT AVAILABLE FOR INDIVIDUALS WITH NEUROENDOCRINEIMMUNE DISORDERS, BUT IT COULD BE A MODEL TO BE APPLIED IN OUR COMMUNITY.
The “Cash & Counseling Model” Vision Statement
The Cash & Counseling service model is a form of consumer-direction or self-direction intended to empower individuals to make choices and take control of the community support services that they receive. The goal of the model is to enhance their ability to live the life they wish to in the community. This vision evolved from a tested model which yielded very positive results. Cash & Counseling seeks to create a new model through the inclusion of principles that go beyond what is already possible. The following principles are essential to the Cash & Counseling model.
Ideally the fully flexible budget would allow the participant to hire legally responsible relatives, purchase goods and services from vendors without Medicaid provider agreements, and receive some part of the budget in cash. To read the complete vision statement go to or type the following link on your web browser
Links For Other Resources
Patient Assistance Program - Partnership for Prescription Assistance is the web site where patients, caregivers, and prescribers can find the information, forms that can be filed electronically and the list of available prescription drugs under the financial assistance program for individuals who don't have health insurance or receive any or limited assistance from the government.
A Health Handbook for Women with Disabilities from the Hisperian Foundation - A non-profit publisher of books and educational materials that help people take the lead in their own health care and organize to improve health conditions in their communities. Simply written, heavily illustrated, and developed in collaboration with groups around the world, our books contain a wealth of life-saving information on diagnosing and treating a broad range of health problems.
Security Disability Coalition - Web site outlining Social
Security much needed reform. A good source of information if you
are seeking disability benefits under Social Security.
The New York State CFIDS/FMS Association - Rome, New York - We want to welcome Will Fiacco and the new NEIDs organization that he and other patient advocates have established in the past few months in the state of New York. PANDORA is looking forward to collaborating with Will and members of his team in issues that are important to our community. If you live in the New York area please send Will an e-mail congratulating him and lending your voice so he and others can create awareness to the crucial issues affecting our community.
Our CFS/FM World, Inc. -Chino Valley, Arizona, U.S. - They are a nonprofit organization maintained by sufferers of Fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome. Our Mission is to improve the quality of life for fellow sufferers, while increasing public, governmental and medical awareness of these diseases. We are grateful to them for supporting our advocacy efforts in Florida and nationwide.
The De Paul University, Chronic Illness Initiative program needs our support. Please give generously and earmark your financial donation for CFS, FM, GWS, MCS, Lyme Disease, Lupus or any other related illness of your choice.
CFS/ME/FM PROFESSIONAL ORGANIZATIONS
Medical professional association dedicated to foster research and treatments for chronic fatigue syndrome, fibromyalgia, gulf war syndrome and related illnesses. Current President is Dr. Nancy Klimas. P.A.N.D.O.R.A. and the CDC sponsored their 2007 international conference in Fort Lauderdale, Florida and P.A.N.D.O.R.A. was also the host organization. Researchers and physicians from 21 countries attended and presented at this outstanding conference. advocates from the U.S. and from other countries also attended the patient conference and participated in the Advocates Extraordinaire!© Advocacy and Leadership training sponsored by Purdue Pharma, Marc Iverson, Pro-Health,Inc, the HHV-6 Foundation, BioEnergy Labs, Frankel and Newfield, The Lanford Life-Lyme Foundation and many more!
Click here for complete ongoing updated post-information on this great event It is being touted as one of the best conference the CFS community has ever had and the largest one for the IACFS and for P.A.N.D.O.R.A. You better be ready for the next one!
Agent for Change is the blog of the founder of P.A.N.D.O.R.A.- Marly Silverman. She will share her personal insight on issues that affect the CFS-ME, FM, GWI, and MCS and related illnesses community.
Check the blog of Craig J. Phillips, a traumatic brain injury (TBI) survivor who despite all odds against him has accomplished an incredible journey. Phillips's writings demonstrate a strong spiritual connection to G-d. His personal experiences are translated to his writings and to his purpose of leading a fulfilling and thriving life.
You have to check the new web site of ChronicBabe.com
Jennifer Prokopy is the brains behind the web site and her blog. At PANDORA, we are all CFS/FibroBabes! Jenny has one of the most amazing dispositions towards life and towards her new career. You have to read one of her latest articles that was posted on Young People For... It is titled "One Woman's negativity is another woman's empowerment". Jenny's has found a very creative way to re-invent herself and to encourage others to do the same when faced with a life long invisible, and so far without a cure type of illness - Fibromyalgia.
Sabrina Johnson, a P.A.N.D.O.R.A. Board Member & advocate of Fibromyalgia has updated her web-site www.fibrocop.wordpress.com.
Check it out for: General information, national & international advocacy activities, events, post articles & notices, updates on international FM awareness, start a conversation or post your motivational thoughts.