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Newsletter January 15, 2008

P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
Greetings!
Pandora
AN IMPORTANT E-MAIL ANNOUNCEMENT!

New York Times reporter asks his readers: IS FIBROMYALGIA REAL? This old myth surfaces once again and we need your voice more than ever!
WE NEED YOUR VOICE MORE THAN EVER!

On January 14, 2008, The New York Times published an article titled:
Drug Approved. Is Disease Real? that re-surfaced some old myths, including the one whether fibromyalgia is real illness/disease or condition.

Please click here read the article in the New York Times.

Please click here to read the article on AOL.News

The Public Policy Committee of P.A.N.D.O.R.A., chaired by Dr. Kenneth Friedman is working on an letter/op-ed to be sent to the New York Times so our community can have a voice in this important debate.

In addition, today at 11 am EST, on the Diane Rhem Show on NPR - National Public Radio, a one hour show was broadcasted with the following guest:

Mrs. Frances Bremer, Spokesperson, National Fibromyalgia Association, (wife of former IRAQ Ambassador Paul Bremer, III.)

Dr. Norton Hadler, Professor Of Medicine and Microbiology/Immunology, University of North Carolina, Chapel Hill, attending Rheumatologist,UNC Hospitals

Alex Berenson, reporter, New York Times

Dr. Patrick Wood, researcher and clinician, specializing in Fibromyalgia, chief medical officer of Angler Biomedical Technologies

The show was provocative and it demonstrates that although our advocacy movement is progressing, we are again being reminded of how far we are from general acceptance by the medical community of fibromyalgia as a real & valid medical condition.

But we are determined in continuing with our mission and we will keep you posted on any reply we receive from the New York Times. If our our op-ed is not accepted for publication, we will post it on our web site; will send you via an e-announcement and will share it with our sister organizations and partners in our global community.

Please support our efforts by sending a letter to the editor of the New York Times. Please be polite in your statements and in your e-mails/letters,  but be strong in your determination to create awareness of the plight of FM patients in the U.S. and beyond.
P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineiimmune Disorders Org. for Research & Advocacy, Inc.
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