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Newsletter May 5, 2007

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Darneen Akers producer Living with FM and mother Darlene FM sufferer
P.A.N.D.O.R.A. Invites you to our May 6, 2007 Fibromyalgia Awareness Day Event in Boca Raton, Florida!  
 
Movie Preview: "Living with Fibromyalgia" - A Journey of Hope and Understanding -
You want to be there at the Dawson Theatre in Boca Raton, Florida!  

MAY 2007 IS PANDORA'S AWARENESS MONTH FOR CFS, FM, GWS, MCS AND RELATED ILLNESSES.  

Visit our web site  for additional information on other Awareness Day Events location in Florida and beyond for CFS and FM. Support our efforts and the efforts of other sister organizations in the U.S.

Details
Event Sponsors
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Local Event Sponsors
Let's Get Health, LLC - Principal: Patricia Vargas
Let's Get Well, LLC
Complete Rehab and Medical Centers
Event Sponsors
Edible Arrangements
 
Edible Arrangements 3221 N. Federal Highway, Pompano Beach, FL  33064, phone: 954-782-3222
To Your Health, The Original Resource for Fibromyalgia, Chronic Fatigue, Arthritis & Chronic Pain
Dear Pandora Member, 

May 12 is International Fibromyalgia Awareness Day. In honor of this very special day, on May 6, 2007, we are presenting a film provided by the National Fibromyalgia Association, "Living With Fibromyalgia: A Journey of Hope and Understanding." This 70-minute documentary tells the story of seven individuals and through that, OUR journey and that of our families. In the movie there is an interview with a doctor as well.

It will be followed by brief presentations about the newest treatments and research as well as a question and answer session with our experts, Dr. Philippe Saxe, Rheumatologist and Researcher; Dr. Kenneth Woliner, Internist; and Dr. Craig Bauer, Chiropractic Physician. Information on nutrition regimen will also be available.  

We need to continue to create awareness in our state for fibromyalgia and the movie shows the reasons why we need to establish the Florida Neuroendocrineimmune Institute," says Marla Silverman, president and founder of P.A.N.D.O.R.A., a nonprofit 501 c 3 organization for individuals with fibromyalgia and other neuroendocrineimmune disorders, and it is sponsoring the movie presentation. Our goal is to create awareness of the plight of individuals suffering with neuroendocrineimmune disorders. Our mission is to address and alleviate many of the issues that affect the quality of life of persons who are diagnosed with fibromyalgia and other neuroendocrineimmune disorders."

Yvette Taylor, Event Coordinator and member of P.A.N.D.O.R.A.'s Board of Directors, believes that this event " will be a wonderful opportunity for individuals with FM and their friends and family to meet and foster great a greater understanding of fibromyalgia. Our expert panel will be able to answer your questions, and this invisible disorder will gain new visibility in our community."

 

Darnee Akers, producer, Living with FM and her mother Darlene

The free event (donations appreciated to defer costs and support Pandora) will be held on:

Sunday, May 6, from 1 to 4 p.m.

Boca Raton Community Hospital

Education Building, Dawson Theater

800 Meadows Road

Boca Raton, FL, 33486

(Past the Emergency Room Building)

 

RSVP: 954-783-6771

E-mail: ytpandora@aol.com

 

Please bring family and friends. As we all know, living with an invisible chronic disorder is very difficult for others to understand. You may look fine, but feel terrible! This event will be a validation and an educational experience.

 

We look forward to seeing you on May 6!
 
Sincerely,
 

Yvette Taylor

Chairperson - Fibromyalgia Awareness Day Event

Board of Directors- P.A.N.D.O.R.A
 

P.A.N.D.O.R.A.- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc., a non profit 501 c 3 organization.
 
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