chronic fatigue syndrome, fibromyalgia, fms, cfs, empowerment groups, cfids

A Non-Profit Organization

Board of Directors

CFIDS Association of America, Inc and P.A.N.D.O.R.A. engage in a partnership

Marly McKibben, Founder of P.A.N.D.O.R.A., Inc. & Rebecca Artman, Chairwoman, Legislative Affairs and Advocacy Committee will attend and exhibit at the “Inspiring Women’s Success Conference & Expo 2005”, May 1-3, 2005, Tampa, Florida, Sponsored by: Bay Area Women’s Professionals, Inc and the National Society of Hispanic MBA-Tampa Chapter.

The CFIDS Association of America, Inc and P.A.N.D.O.R.A, have once again engage in a great partnership to raise awareness in Florida and in the U.S. to the plight of persons with Neuroendocrineimmune Disorders – folks who are afflicted with Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM). We are sharing the cost of exhibiting and participating in this great conference.

It is a worthwhile educational effort to raise awareness within a professional and business women’s environment. The audience will consist of women in business and women in power coming from all ethnic backgrounds including African American women and Hispanic women.

According to the Center for Disease Control and Prevention - CDC, (Dr. Bill Reeves, CFSAC meeting on April 4, 2005,) it was reported that 90% of persons afflicted with CFS/CFIDS are women. According to DePaul University, (Dr. Jason Leonard et all, 1999) the highest prevalence rate of folks with CFS - 726 per every 100,000- is actually found in the Hispanic - Mexican American and Puerto Rican population. African American CFS Prevalence rate is 337 per 100,000. CFS prevalence among white is – 310 per 100,000. Since then there have been other prevalence studies (CDC) indicating that 2.2 million persons in the U.S. may suffer from CFS. These findings need to be shared with all segments of the female population in our country.

Fibromyalgia, (FM) prevalence rates are estimated to affect 8 to 10 million persons in the U.S., and from this population 82-85% are women. (Source - Fibromyalgia can be overwhelmingly debilitating and unfortunately in many cases will lead to disability. It will affect women financially, physically and emotionally.

According to another report issued last year by the Center of Disease Control and Prevention (CDC) the yearly Economic Impact in the national Economy due to CFS was estimated to be $9.1 billion dollars. The figures don’t even include medical and disability costs.

Recently at the International Women’s Day at Florida Atlantic University’s Davie Campus, Jacqueline Cattani, director for the Center for Biological Defense at the University of South Florida spoke eloquently when she stated that “Women need to be aware about what needs to be done for and by women”. She added that “Women need a more equal share of the nation’s health resources.”(Sun Sentinel April 24, 205)

These facts signify that a mother, sister, aunt and or a daughter can be afflicted with a neuroendocrineimmune disorder. It also means a co-worker, a business client, a physician, your child’s teacher and even a dedicated female Rabbi can suffer from Chronic Fatigue Syndrome and Fibromyalgia. Many women from all walks of life in our communities will be afflicted with these neuroendocrineimmune disorders. Once women in power and in business are aware of these important facts, they can join our efforts and require that effective changes and actions be taken to ensure a solid national health policy covering issues of Chronic Fatigue Syndrome and Fibromyalgia in the U.S. The conference participants are coming from Florida and from other nearby states. For more information on the conference click on the link below.

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