Because children fall ill to chronic fatigue syndrome and fibromyalgia too and if physicians are not aware of this devastating fact, these children may not be able to play like normal children - as the children playing in the sand, building sand castles. The sad fact is that they may risk losing their entire childhood surrounded by a severe, disabling illness, robbing them of their childhood and may face, as adults serious, long term consequences in our society. We have to stop the cycle! Help us so we can pro-actively assist in finding the cause and ultimately the cure for CFS and FM in children too. Let's put an end to the unnecessary suffering of parents and their children who are at complete loss when faced with these illnesses.
Help us to create awareness in our world-wide community to these serious issues. It is heartbreaking to see bewildered parents who are at loss dealing with CFS and FM. Often one of the parents in those situations may be dealing with CFS, FM or another neuroendocrineimmune disorder.
Donate today and help us to build a fund with other organizations like the Wisconsin CFS Association to build a blood/tissue bank for CFS and other related illnesses and or to apply towards CFS/FM Pediatrics research.
At the 8th International IACFS Conference on Chronic Fatigue Syndrome, Fibromyalgia and Other Related Illnesses, at the Bahia Mar Resort, Fort Lauderdale, Florida, from Jan 10-14, 2007, a proposed CFS pediatric definition will be presented to the public for the first time! It is an important step to diagnosis, treatment and ultimately a cure. Sign up here to attend this great conference.
THE PEDIATRIC PENNIES© CAMPAIGN BACKGROUND
by Marly Silverman
The idea is simple. Find an old jar or box and name it PEDIATRIC PENNIES™ . Every time you get a penny, put it in your container. The project can be for the school year or calendar year. The 2005 campaign ends the week of May 12, 2006, which is Neuroendocrineimmune Disorders Awareness Day. Neuroendocrineimmune Disorders includes Chronic Fatigue Syndrome, Fibromyalgia, and Gulf War Syndrome and Multiple Chemical Sensitivities.
Any time the box or jar is full, roll the pennies by hand or by a bank machine and donate the amount to our PEDIATRIC PENNIES™ campaign. Donations can be made by check or via our web sites at http://www.pandoranet.info or http:/www.Panda-clinic.com.
Everyone can be involved in raising awareness of Pediatric Chronic Fatigue Syndrome and Pediatric Fibromyalgia. Help us find a cure for Pediatric Neuroendocrineimmune Disorders.
P.A.N.D.O.R.A. has set the goal to raise $6 million dollars in pennies for Pediatric Neuroendocrineimmune Disorders research and education. Six million dollars has been the National Institute of Health's (NIH) fiscal budget for Adult and Pediatric CFS. Similar amounts have been set aside for Fibromyalgia research. It is a symbolic reminder of the need for a significant increase on research for CFS and other Neuroendocrineimmune Disorders.
Rebecca Artman, Vice President of P.A.N.D.O.R.A. says: "The idea for PEDIATRIC PENNIES™ came to be when I noticed the way, we toss away pennies, as though they are useless. The people who suffer from Neuroendocrineimmune Disorders are a lot like those pennies, tossed aside because the illness is not glamorous"
Pat Fero, Executive Director of P.A.N.D.O.R.A. adds "The situation for children with Neuroendocrineimmune Disorders is perilous. Currently, little kids can be pressured and cajoled into participating in activities they cannot possibly accomplish. Expectations are out of line with the child's intellectual, emotional, social and physical abilities. Failure follows and instead of a growth in self-reliance, these children experience self-doubt and self-loathing. In middle school and high school, the situation may worsen to the point where kids drop out as soon as they are able. It is a no win situation for kids, parents and school personal. Pediatric Pennies seeks to change the outlook for school children with these illnesses. With proper diagnosis, a treatment protocol and accommodations in school curriculum, children with CFS, FM and other Neuroendocrineimmune disorders can thrive and become healthy adults."
Jill Mclaughlin, the mother of child with CFS (Chronic Fatigue Syndrome) and a nationally recognized advocate for Children and Adults with CFS states: "There is still a lack of awareness to the fact that children become ill with CFS; yet many experts agree that if anything, children are more seriously affected than adults. My daughter was a very active, intelligent, social child who was frequently coming down with what we thought was the flu. We took her to doctors and she would seem better, only to get sick again. She missed a good deal of school, but was forced to try to catch up on her own. It took several years and visits to several doctors before she was finally diagnosed with CFS in the 6th grade. We were relieved to have a diagnosis, but at the time had no idea of the seriousness of the illness."
She further stated: "Due to the general lack of awareness and misconceptions, as her parents, we were reported to the Department of Social Services because of her frequent school absences. It is abusive to send a child to school when they are ill, but unfortunately, we were accused of neglect because we did not send her to school. Children are virtually being punished for being sick. Without adequate research and treatment, these children and their families will continue to suffer, not only from the illness itself but from the ignorance surrounding it."
PEDIATRIC PENNIES™ is an ongoing campaign. Along the way we will update you about the partnerships we will create in the campaign. As of now, the Chronic Fatigue Syndrome, Fibromyalgia and Chemical Sensitivity oalition of Chicago, and the Vermont CFIDS Association Inc PEDIATRIC PENNIES™ are an ongoing campaign and we will along the way let you know the partnerships we create along the campaign. As of now, the Chronic Fatigue Syndrome, Fibromyalgia and Chemical Sensitivity Coalition of Chicago, The Vermont CFIDS Association Inc., Dominie Soo Bush ( http://www.fms-help.com ) have all lent their support to PANDA and P.A.N.D.O.R.A.